Pulse Brain · Growing Health Evidence Index
Peer-reviewed

The attitude of patients with progressive ataxias towards clinical trials

Gilbert Thomas‐Black, Andrada Dumitrascu, Héctor García‐Moreno, Julie Vallortigara, Julie Greenfield, Barry Hunt, Susan Walther, Mackenzie Wells, David R. Lynch, Hugh Montgomery, Paola Giunti

Orphanet Journal of Rare Diseases · 2022

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Summary

Knowledge of motivations for and barriers to trial participation as well as the acceptability of investigations, time commitments and routes of drug administration should inform better, more patient focused trial design. This in turn may improve recruitment and retention of participants to future trials.

Source type
Peer-reviewed study
DOI
10.1186/s13023-021-02091-x
Catalogue ID
BFmoakvpzf-1obje2
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