Summary
This paper documents the community-engaged development of the STRIDE (Strengthening Translational Research in Diverse Enrollment) intervention, which addresses multifactorial barriers to research participation among Black and Latinx populations. The intervention integrates three components targeting the informed consent process: culturally competent staff training, improved health-literacy eConsent materials, and participant testimonial videos. The authors indicate that effectiveness evaluation is ongoing, with this paper presenting the intervention design and development methodology rather than efficacy results.
UK applicability
Whilst the intervention addresses barriers specific to the United States healthcare and research context, the underlying principles of community-engaged intervention development and culturally sensitive research practices are applicable to UK efforts to increase research participation among underrepresented ethnic minority groups. However, the specific barriers and institutional structures differ between health systems.
Key measures
Intervention components and development process (simulation training programme, eConsent framework design, storytelling video vignettes); community feedback mechanisms; no effectiveness outcomes reported in this development paper
Outcomes reported
The study describes the development and components of the STRIDE intervention, a multi-component programme designed to increase research participation among underrepresented racial and ethnic groups during the informed consent process. The intervention comprises three elements: simulation-based training for research staff, an electronic consent framework, and video-based storytelling from prior research participants.
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