Summary
This paper describes the development of the STRIDE (Strengthening Translational Research in Diverse Enrollment) intervention, created using community-engaged methods to address barriers to biomedical research participation among Black and Latinx individuals. The multi-component intervention comprises culturally-competent staff training, redesigned electronic consent materials, and participant testimonial videos, integrated into the informed consent process. The authors note that effectiveness evaluation is ongoing, positioning this as a methodology paper that could inform strategies to diversify research participant populations.
UK applicability
The findings address research participation disparities relevant to UK clinical research ethics and diversity in research populations. However, the intervention's cultural specificity to Black and Latinx communities in the United States may require substantial adaptation for UK contexts with different ethnic minority populations, health system structures, and research governance frameworks.
Key measures
Intervention components and design features developed through community engagement; no effectiveness outcomes reported in this development paper
Outcomes reported
The study reports the development and design of the STRIDE intervention, a three-component programme comprising simulation-based training for research staff, an electronic consent framework, and video-based storytelling from prior research participants. The intervention was designed to address multi-level barriers to research participation during the informed consent process, with effectiveness to be evaluated in ongoing studies.
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