Pulse Brain · Growing Health Evidence Index
Tier 3 — Observational / field trialPeer-reviewed

Patient and healthcare provider views on a patient-reported outcomes portal

Robert M. Cronin, Douglas Conway, David Condon, Rebecca N Jerome, Daniel W. Byrne, Paul A. Harris

Journal of the American Medical Informatics Association · 2018

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Summary

This study examined how a secure web-based patient-reported outcomes portal could be designed to engage patients in monitoring their health whilst providing clinically useful information to healthcare providers. Conducted with 480 participants (239 healthy volunteers and 241 with self-reported anxiety and/or depression), the research found strong acceptance of the concept across both cohorts, though implementation would require personalisation, integration with existing electronic health records, and alignment with clinician workflows. The findings suggest substantial patient and provider demand for self-assessment tools that deliver individualised feedback on health metrics.

UK applicability

The findings are relevant to UK NHS digital transformation efforts, as they identify design principles for patient-facing health technology that could support integrated care systems and shared decision-making. However, successful implementation in UK practice would require careful integration with NHS systems architecture and consideration of how such tools fit within existing GP and specialist workflows.

Key measures

PROMIS® domain survey scores; participant feedback on dashboard concept; healthcare provider perspectives on portal feasibility and workflow integration; bivariate and regression analyses comparing cohorts

Outcomes reported

The study measured patient and healthcare provider perspectives on the feasibility, features, and acceptability of a patient-centric electronic dashboard for collecting and displaying patient-reported outcome metrics using PROMIS® surveys. Participants from both healthy and anxiety/depression cohorts rated their willingness to use such a portal and identified key considerations for implementation.

Theme
Measurement & metrics
Subject
Measurement methods & nutrient profiling
Study type
Research
Study design
Observational cohort with qualitative engagement component
Source type
Peer-reviewed study
Status
Published
Geography
United States
System type
Human clinical
DOI
10.1093/jamia/ocy111
Catalogue ID
BFmoso8xrl-rdw7hq

Topic tags

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