Pulse Brain · Growing Health Evidence Index
Tier 3 — Observational / field trialPeer-reviewed

Development of a multi-component intervention to promote participation of Black and Latinx individuals in biomedical research

Maria I. Danila, Jeroan J. Allison, Karin Valentine Goins, Germán Chiriboga, Melissa A. Fischer, Melissa Puliafico, Amy S. Mudano, Elizabeth J. Rahn, Jeanne S. Merchant, Colleen Lawrence, Leah Dunkel, Tiffany Israel, Bruce Barton, Fred Jenoure, Tiffany Alexander, Danny Cruz, Marva Douglas, Jacqueline Sims, Al Richmond, Erik D. Roberson, Carol Chambless, Paul A. Harris, Kenneth G. Saag, Stephenie C. Lemon

Journal of Clinical and Translational Science · 2021

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Summary

This paper describes the development of STRIDE, a multi-component intervention designed to address known barriers to research participation among Black and Latinx individuals. Using community-engaged methods, the authors developed three integrated components: cultural competency training for research assistants, an electronic consent framework to improve comprehension, and video testimonies from prior diverse research participants. The intervention addresses barriers at participant, research team, and research process levels within the informed consent procedure.

UK applicability

The barriers to research participation among minoritised communities are broadly similar in the United Kingdom as in the United States, though UK contextual factors (e.g., NHS research governance, different ethnic demographic patterns) would require local adaptation. The community-engaged development methodology and consent process innovations are potentially transferable to UK research settings.

Key measures

Qualitative feedback from Community Investigators and community engagement studios on intervention components; ongoing effectiveness study metrics not yet reported in this development paper

Outcomes reported

The study describes development and testing of the STRIDE intervention, a three-component programme comprising simulation-based training for research staff, electronic consent frameworks, and video-based storytelling from prior diverse research participants. The study aimed to increase research participation among underrepresented racial and ethnic minority groups.

Theme
Policy, governance & rights
Subject
Other / interdisciplinary
Study type
Research
Study design
Intervention development study using community-engaged approach
Source type
Peer-reviewed study
Status
Published
Geography
United States
System type
Human clinical
DOI
10.1017/cts.2021.797
Catalogue ID
BFmowc1z6w-0bel7u

Topic tags

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