Pulse Brain · Growing Health Evidence Index
Tier 3 — Observational / field trialPeer-reviewedConventional

Operationalising a real-time research ethics approach: supporting ethical mindfulness in agriculture-nutrition-health research in Malawi

Limbanazo Matandika, Kate M. Millar, Eric Umar, Edward J. M. Joy, Joseph Matthew Mfutso-Bengo

BMC Medical Ethics · 2022

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Summary

This case study presents a novel real-time research ethics approach (RTREA) embedded within a community-based agricultural intervention trial in rural Malawi. By positioning a bioethics team within the research implementation, the approach enabled continuous identification of social and ethical concerns and facilitated dialogue between researchers and participants. The findings suggest that embedded, dynamic ethics processes can enhance ethical responsiveness and participant experience in complex agriculture-nutrition-health research partnerships.

Regional applicability

The study was conducted in Malawi and reflects the context of low-income agricultural settings. The methodological framework for embedding ethics teams within implementation may be transferable to United Kingdom-based research partnerships, particularly those involving community engagement or vulnerable populations, though institutional and regulatory contexts differ significantly.

Key measures

Identification and characterisation of ethical issues; documentation of participants' lived research experience; implementation of conversation spaces; ethical responsiveness during trial conduct

Outcomes reported

The study demonstrates how embedding a bioethics team within a community-based randomised controlled trial can identify social and ethical concerns, enhance researchers' awareness of participants' lived experience, and facilitate conversation spaces addressing ethical issues during research implementation.

Theme
Policy, governance & rights
Subject
Other / interdisciplinary
Study type
Research
Study design
Case study with qualitative methods (focus group discussions, in-depth interviews, workshops, observational data, document analysis)
Source type
Peer-reviewed study
Status
Published
Geography
Malawi
System type
Mixed farming
DOI
10.1186/s12910-021-00740-1
Catalogue ID
SNmutc7wny-ajtkkd

Topic tags

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